CureDuchenne has launched a national public service announcement campaign to highlight the urgent need for new treatments for ...
There are 24 hours in a day, so there should be enough time in each one to keep from feeling caregiver burnout, says columnist.
Columnist Shalom Lim is grateful that his profile on the Purple Parade website highlights the importance of his disability ...
Key milestones have been met in a clinical trial testing a one-time treatment that aims to turn off the faulty gene in FSHD, ...
After decades of advocacy work, columnist Patrick Moeschen is glad to see MD patients treated as experts given their lived ...
This year’s Be Their Muscle campaign has raised more than $641,000 to support the MDA Summer Camp and help advance research ...
The FDA is reviewing full approval bids for the Duchenne therapies Amondys 45 and Vyondys 53, with decisions expected by ...
There’s a certain rhythm to gardening that I’ve always loved. The early mornings, the quiet work of turning soil, the satisfaction of seeing something grow because you cared for it. In my backyard, ...
Histone deacetylase inhibitors are a treatment approach designed to work by blocking an enzyme that turns off gene activity. This may ultimately help by slowing muscle loss and disease progression.
Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google I am going at a pace I can’t maintain. As a former half-marathon ...
For people with Duchenne muscular dystrophy (DMD), 2026 promises to be a year of tremendous excitement, with several new therapies poised for likely approval in the U.S., according to DMD advocates.