There are 24 hours in a day, so there should be enough time in each one to keep from feeling caregiver burnout, says columnist.

Key milestones have been met in a clinical trial testing a one-time treatment that aims to turn off the faulty gene in FSHD, ...

Columnist Shalom Lim is grateful that his profile on the Purple Parade website highlights the importance of his disability ...

This year’s Be Their Muscle campaign has raised more than $641,000 to support the MDA Summer Camp and help advance research ...

After decades of advocacy work, columnist Patrick Moeschen is glad to see MD patients treated as experts given their lived ...

The FDA is reviewing full approval bids for the Duchenne therapies Amondys 45 and Vyondys 53, with decisions expected by ...

On July 29, Capricor Therapeutics will meet with an FDA advisory committee regarding its second attempt to win deramiocel's approval for DMD.

Health Canada has accepted and granted priority review to Italfarmaco’s application seeking the approval of oral givinostat, sold in the U.S. under the brand name Duvyzat, to treat Duchenne muscular ...

Back in March, I wrote about how living with Duchenne muscular dystrophy (DMD) has shaped my perspective on accessible design. After decades of moving through systems that were not built with people ...

The U.S. Food and Drug Administration (FDA) has granted both orphan drug and rare pediatric disease designations to GEn1E Lifesciences‘ GEn-1123 as a potential treatment for Duchenne muscular ...

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