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CDKL5 deficiency disorder (CDD) is a genetic condition that causes seizures and significant delays in many aspects of development. CDD is about #MoreThanSeizures, it’s about daily challenges and interruptions to family life, it’s about skipping lunch to provide care. On World #CDKL5 Day, hear from Karen Utley, President & Co-Founder, International Foundation for CDKL5 Research, about her experiences. #CDKL5awareness | UCB Biopharma
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A quick recap of our CDKL5 Center of Excellence Trip: 1) the seizures she had since 8 weeks old until 15 months old (tonic) stopped and now clinic (mid February or this year) are beginning. Basically with CDKL5 it is going to be
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