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Allison Pullins’ son, James, has lots to say about what Marfan syndrome means to him. Does your child? Whether it means that your daughter is taller than her brother or that your son gets to wear really cool glasses, we have an opportunity for them to play a role in raising Marfan awareness. Simply create a video asking them what Marfan syndrome means to them and then send it to emasciale@marfan.org by January 24 to be included in our Marfan Awareness Month videos in February. | The Marfan Found
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