Southern California mom works to fight Batten Disease
4:33
Southern California mom works to fight Batten Disease
3 weeks ago
CBS News
Batten Disease
Batten Disease
May 8, 2018
nationwidechildrens.org
Batten Disease Program
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choc.org
Understanding Batten - Beyond Batten Disease Foundation
Understanding Batten - Beyond Batten Disease Foundation
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Family fighting for cure after daughter's batten disease diagnosis
2:32
Family fighting for cure after daughter's batten disease diagnosis
9 months ago
CBS News
“It’s Dr. Emily’s relentless effort to stop Batten disease in its tracks that’s given our daughter a quality of life we didn’t think was possible when she was first diagnosed. I just want to hug her every time I see her.” Go behind the scenes with Dr. Emily de Los Reyes. | Nationwide Children's Hospital
1:26
“It’s Dr. Emily’s relentless effort to stop Batten disease in its tracks that’s given our daughter a quality of life we didn’t think was possible when she was first diagnosed. I just want to hug her every time I see her.” Go behind the scenes with Dr. Emily de Los Reyes. | Nationwide Children's Hospital
19.7K viewsNov 8, 2019
FacebookNationwide Children's Hospital
What is Batten disease? Doctor and family share insights on rare condition
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Batten Disease
6 months ago
katv.com
23:17
Ellery is diagnosed with a progressive and terminal disorder known as Batten disease. This deadly disease takes away a child’s ability to walk, talk, speak, and see. As of now Ellery is still able to say a few words like “Mickey” and “Twinkle” but her parents know this will not last forever. Ellery’s mom wants the world to know that they try to focus on the joy but Batten disease is forever destroying a part of their family. | Special Books by Special Kids
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