"The thing about EB is it is a battle, but it is a battle we are all fighting and we are all winning."💙 One of the highlights of our Fight Night on Friday night was when DEBRA Ambassador Grace Fincham joined Frank Warren to share a beautiful account of living with EB. Grace spoke so bravely about the challenges faced living with EB, and the loss of her brother, and how she stays positive despite the immense daily pain and struggles, prompting a well-deserved standing ovation from everyone in th
"The thing about EB is it is a battle, but it is a battle we are all fighting …
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This #GivingTuesday, bring joy and belonging to kids living with EB. 💛 We’re raising $15,000 to create a welcoming and accessible Kids Zone at the 2026 debra Care Conference (DCC), a space where kids with Epidermolysis Bullosa (EB) can participate fully, safely, and joyfully. For caregivers, it’s a chance to attend educational conference sessions without worry. And for our kids, it’s a place where the world finally meets them where they are. Join us in making play possible at https://debra.puls
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109K views · 452 reactions | Join Colin Farrell's art class! | Debra Ireland - The Butterfly Skin Charity | Facebook
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93K views · 549 reactions | This is 曆Emma曆. When she was born, her parents were told she wouldn't last a week. Because of the continued support from her family and the EB community, she is now 35 years old and living the best life she can live . Your support matters to her and all those with EB. You will never meet braver people than those living with EB (epidermolysis bullosa). | Debra Ireland - The Butterfly Skin Charity | Facebook
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Graeme and Isla discusses the horrors of EB in DEBRA appeal
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1.8K views · 53 reactions | Imagine your skin being in constant pain? No one should have to live like this. Our DEBRA President Simon Weston CBE shares Fazeel's and Oliver's stories living with the painful genetic skin condition, EB. Sadly since making this film Oliver has passed away. With your help we can find life-changing treatments to #StopThePain for people living with EB: bit.ly/3TUjoxP Thank you for helping.  #EBAwarenessWeek #EBAwarenessWeek2022 | DEBRA UK | Facebook
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